You mustn’t be put in a box – you keep Going!   Who is Martha Harlam ?

Ataxia has defined most of my life. Born with hereditary Ataxia I am a 3rd generation Ataxian. All the girls in my family were affected. The progressive nature of this disease has affected my speech, balance, fine motor skills, swallowing, intestinal movements and my mobility. All these things are affected by this neurological disease to this day.

But the greatest loss of all was my operatic career in Europe ( Germany ) at age 38. The State Theaters declared me not only a threat to myself but a threat to everyone on stage. So I was forced out of my contacts. After the diagnosis of Ataxia was made Germany gave me a disability pension and a re-training program.

Even a new training in theater management was overtaken by the Ataxia disease. Only my partner was able to cope with the situation. We moved from the cold of Germany to the warmer climate of Spain. I bought a mobility scooter to get around and watched as the disability was on the move again – my Ataxia was progressing.

Why the solution project ?

It is highly improbable that the wonderful new research, stem cell and genetic discoveries into Ataxia at this late stage will benefit me. But life goes on! I may be slowed down by the disability but my thoughts continue. All the issues that affect most people are issues that have consumed my thoughts as well. The solution project gives me the opportunity to address some of these issues.

The areas that are preoccupying me the most are things like human rights, climate change, R&D for medicine and rare diseases, gender and workplace equality, LGBTQE issues, disability awareness, vaccine development and environmental protection awareness. Sure it’s a heavy lift and especially if you are incapacitated with a neurological condition. But this shouldn’t deter someone from taking action. Realizing these issues of need, I have found partners to do the heavy lifting for me. Since hereditary Ataxia made having children genetically impossible on my own – the “ one tree planted “ organization has given me the opportunity to create a new kind of living legacy.

Having this new found energy made me aware that there is so much to do. Even if you are forced to sit in an armchair – The Solution Project gives me a reason to be a part of the solution in my own way. Having found event organizers makes me hopeful that I can contribute in some small way.

Each solution has its own donation possibility. Read more about them – make a choice!

Find a Cure

Rare Disease Awareness

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One tree Planted

Climate Change / Reforestation

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The Ocean Clean Up

Environmental Protection

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WOW Global Initiative

Gender Equality For Women

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Better Up

Corporate Accountability For Mental Health

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EDF

Disability Awareness

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Youth Underground

Human Rights And Human Trafficking

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WQXR radio

Cultural Awareness

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1 Million Women

Gender And Climate Change

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Ataxia – a tale of survival and hope

A Member of ataxia uk.org

“The doctors stood around my bed as they gave their diagnosis of the neurological tests. They were all unanimous in their decision. They all said I would need to give up my singing contracts and start to retrain for a new profession. But what that should be, they didn’t say. This was a scary pivotal moment in my life. “

A Member of ataxia uk.org