Our Mission

This is an influential project that helps the daily lives of people living with Ataxia.  The Ataxia Care project helps Ataxia people by funding through crowdfunding donations. We are making a daily difference in the living situation and quality of people who have Ataxia with home improvement needs, nursing care, and aid equipment needs. Ataxia Care changes the lives of people who have Ataxia.

Application process

To apply for your need please contact the email address:  m.harlam@hotmail.com

You can also go to the Ataxia Care project website to read about our history and our work: ataxiasurvival.org

Application Process

General information

Ataxia has affected millions of people worldwide since 1983. The most prevalent of the neurological disease being Friedrichs Ataxia. This project works closely with the National Ataxia Foundation USA, Ataxia UK and EuroAtaxia charities. This is a more people oriented Care needs project.

Once the applicant reaches their need funding goal we donate the rest of our yearly funds to the charities associated with Ataxia research.

Your donation today can change the daily situation of an Ataxia sufferer!

DO IT TODAY!

Events for 2021

The Ataxian is a documentary film featuring two people living with Friedreich’s ataxia (FA)- Kyle Bryant and Sean Baumstark, and their team’s legendary bike ride across America in just nine days – The Race Across America. The feature-length documentary spotlights these two men whose will and determination carry them and their teammates across a continent under almost impossible condi- tions – an act that sparks others to take action in their own lives. Kyle, Sean and the team remind us, “Life is about how you react.”

Together with the filmmakers, the Ataxia Care Challenge invite you to share this film and raise funds for the Ataxia Care Challenge by hosting a screening party OR a theater screening.

A screening party is an informal way to share the film with friends either in your home, church or school. This option requires less planning and set-up but allows you to use the film as platform to talk about FA and raise funds to support research.

A theater screening is a structured event that requires more planning but may allow you to invite a larger audience.

The Ataxia Care Challenge is here to help you every step of the way as you plan your event. Contact m.harlam@hotmail.com with any questions or to begin planning.

Hosting a Screening of “The Ataxian”

SCREENING PARTY

AT LEAST ONE MONTH IN ADVANCE:

Choose Your Venue. Your home, church, school, or a local community center are all great options.

AS SOON AS POSSIBLE:

Schedule a call with the Ataxia Care Challenge Grassroots Coordinator to discuss your event and how Ataxia Care Challenge can help.

AS SOON AS POSSIBLE:

If an online platform for donations is desired, work with the Ataxia Care Challenge to set up your donation page.

AS SOON AS POSSIBLE:

Invite friends via email and social media.

TWO WEEKS IN ADVANCE:

Purchase the film through iTunes, Amazon, Google Play, Xbox, or Sony Playstation Network, and do an AV test run with the television or projector you will use.

Make sure to have comfortable seating.

ONE WEEK IN ADVANCE:

Purchase light snacks and drinks for your screening party.

THEATER SCREENING TO-DO LIST

A $5,000 fundraising goal is suggested for each theater screening.

AS SOON AS POSSIBLE:

Schedule a call with the Ataxia Care Challenge to discuss your event, your fundraising strategy, how Ataxia Care Challenge can help promote, and setting up your ticketing/donation page.

AT LEAST TWO MONTHS IN ADVANCE:

Find a venue. The filmmakers have set the following minimum criteria for a theatre venue:

  • Venue must be wheelchair accessible.
  • The direct cost of any venue rental must be covered by a personal contribution or by securing a sponsor.
  • If the screening is being held at a theater, there should be minimum of 100 available seats.
  • The theater must be able to show the film in DCP (digital cinema package) format. The DCP will be shipped to you or the theatre by Ataxia Care Challenge.

AT LEAST TWO MONTHS IN ADVANCE:

Decide whether you’d like to include a pre or post film reception as part of your event.

AS SOON AS POSSIBLE:

Begin promotion of the event through email and social media.

AS SOON AS POSSIBLE:

If you plan to have raffles/auctions or sell advertising in a program booklet to boost advertising, contact local businesses for donations, and artwork as needed.

TWO WEEKS IN ADVANCE:

Confirm receipt of the DCP at the theater, and that it has been successfully tested.

ONE WEEK IN ADVANCE:

Finalize your RSVP list and all event materials and assign volunteer positions.

Serious requests for Ataxia ( local radio station for 1 week  ) anyone can ask anytime on behalf of the Ataxia Care Challenge  – contact m.harlam@ hotmail.com

Movie night ( showing of documentary film- Ataxian ) fundraising viewing For anyone at anytime  ( ask for instructions). Contact: m.harlam@hotmail.com

Ataxia Awareness Day 25 September 2021 – anyone can fundraise for Ataxia

Join Our Event – Virtually to Australia

The reward of completion is 5 Trees 🌲 to be planted in your name. And not just anywhere – The Jane Goodall chimpanzee forests in Uganda have accepted my ataxia website and the Australia challenge.

Sign up today for the registration of the event to Australia. It’s only 25€/ £ . Anyone can finish the 1250km in 6 months ! Tell your friends and family to support of Ataxia! The more people who participate the more for Ataxia.

Ataxia – a tale of survival and hope

A Member of ataxia uk.org

Donations

“The doctors stood around my bed as they gave their diagnosis of the neurological tests. They were all unanimous in their decision. They all said I would need to give up my singing contracts and start to retrain for a new profession. But what that should be, they didn’t say. This was a scary pivotal moment in my life. “

A Member of ataxia uk.org

Donations

Your donations benefit the Ataxia research centers worldwide and Ataxia Care (personal care and Ataxia equipment)

A Member / Friend ataxia uk.org

Donations