In the battle to cope with the situation, a caretaker is someone who will really need to be by your side. In the later stages of the disease , the progressive nature of this disease makes you dependent upon helpers. A caretaker does all the things that you find are slipping away from you !
Here are just some of the things a caretaker winds up doing:
- Housekeeping / cleaning
- Shopping / cooking
- Bathing /. Bed making
- Medication administration
- Driving to doctors / pharmacies
- Telephone calls / all written correspondence
- Urinating / bowel movement ( toilet mobility control)
- Mobility aids control
The engagement of the caretaker in a progressive ataxia situation is often underestimated. For an update of your present caretaker needs it might be necessary to see your primary physician and neurologist to assess your situation. This assessment could lead to care and a disability financial adjustment.
Respect and be kind to your caretaker. They are your last defense against Ataxia !